The DeJaVue Week

Since the last post a week ago, we have had quite a bit happen this week that makes me feel like it was the same week three weeks ago. I think this time I will get a recap as I ran out of discs for taking pictures and the circumstances at the time were not exciting, but more of a scare for Adam and I.

Wednesday: Tyson slept well, but around 5:30 he gave out a cry and Adam found him having fallen off his bed. He brought him in with us and he slept fine the rest of the morning. Around 9 am shortly after Tyson woke up and had his diaper changed he started breathing weird (sounded like short huffy breathes). It lasted for a short time and I got him a bottle thinking that maybe he was just crying for a bottle. I did decide to give him a portion of his breathing treatment, which he had finished a series of three weeks ago. It didn't seem to do much for him but he seemed alright a short time later and was off to play with his toys. After we ate breakfast he just wanted me to be right there by him and I found him coming to me again with the same breathing condition. I didn't know what else I could do and I could tell he was in pain as he would shift from one sitting position to another, crying the whole time, and not able to get comfortable. I called the pediatrician's office and informed them of his morning in which they asked me to bring him in right away. I did and on our way there he fell asleep and I could not wake him by the shake of his foot or yelling out his name. After arriving at the Pediatrician's office he was completely fine again and I thought that the Ped. would think I was making it all up or overexaggerating, but before she came in to see him he started his breathing thing again. She walked by our open door and heard him, then came in and watched him. When it was all over he was out of it again. After a few other maneurisms she said that she thinks he has been having seizures especially from what she just witnessed. I'm just glad that she was able to see what she had seen. I agreed that it could be something like that out of the ordinary of his routine. She ordered a CAT scan of his head and that he be admitted to the hospital. This time I drove him over and we were put in the pediatric unit again. This time Adam was able to come right away and meet us there, which I was a little demanding in because I just didn't know how I could handle all of this again. I requested that they try his feet first for putting in the IV, which they were able to get the first time. Aside from all the normal procedures of hooking him up to monitors he had an EEG test done that evening, which is where they put 24 wires all over his head and get a reading of his brain wave activity. Luckily and unfortunately Tyson did not have any visible signs of a seizure/episode the rest of the time we were there.

Thursday: The night at the hospital went fine. Tyson was a tough child to share a hospital bed with. He began to get excited and ready to venture out in the halls. I waited all morning as usual for him to be discharged after his Ped. came by to check on his status. Once again you would not have thought that the day before he was having problems. A friend picked us up and we ran a few errands with them. We were exhausted after getting home and I very much so wanted a nap, but Tyson was glad to be home too. The rest of the evening went well.

Friday: Tyson slept in our bed. We woke up at 2:30 to him having another breathing episode (seizure). It ended up being a long morning as everything continued on until around 5:30 p.m. Basically from 2:30-6:30 a.m., Adam and I rotated standing up with Tyson trying to comfort him while he experienced the semi-seizures varying in length from less than 1 min. to 8 min. at less than 1 min. to 25 min. intervals. We knew that taking him to the emergency room would not do any good, but when we wondered about his hydration level we decided to take him in for that. I asked the guy at the emergency room entrance what he thought and he said that between then and 1 1/2 hours later (which is when the Ped.'s office opened) Tyson would not get dehydrated. So I walked around outside with him the rest of the morning until the Ped's office opened. The assistants there called his Ped. and she instructed them to give him Motrin, which calmed him down and allowed him to sleep. When the Ped made it in she checked him over and tried to get his EEG results from Salt Lake. From what his Ped. relayed to Primary Children's they suggested that she treat him for seizures and not wait for the results. Once again in her office Tyson woke up and was fine and ready to go, running up and down the hall. After getting home and giving him the medication we picked up, we found that it was not helping and he was still having episodes so after calling the Ped's office again she ordered another medication for me to pick up. It seemed to help a little better, but he was having high fevers getting up to 105 degrees. At this time his Ped told me that he must be having a virus that is causing a fever, which is causing the seizures. We worked to get the fever down with rotating tylenol and motrin and once that worked its course he no longer experienced the seizures.

Saturday: Tyson had a great night with Adam and I getting up every 3 hours to rotate the motrin and tylenol. He was ready to take on the day from the time he got up. The funny thing was to watch Tyson trying to walk as he was very crooked and acting like it was his first time walking. Adam and I had to switch off staying by his side as we didn't want him to fall and hit his head. We went out to the shop for Adam to do maintenance on his truck. Tyson finally reached a point that he could walk by himself without being too wobbly. We took it easy for the night after getting the house cleaned up for Sunday.

Sunday: Once again we had another great night and are hoping it will continue. Daniel and Susie pulled in at 2:30 this morning and will be staying with us for a while. Adam started feeling sick last night so he will stay home with Tyson from church. I've heard of others having fevers and sicknesses so there may be something going around. I'm grateful to not be dealing with it myself right now.